A quick medical update on the transplant journey: the past few days have been a rollercoaster with many twists and turns. Emotions and frustrations have been running high for both of us.

As I type this, Tasha is undergoing an esophagogastroduodenoscopy (EGD) procedure to properly place her feeding core pack tube into her small intestine because they were unable to pass it through the pylorus to place it correctly, which means for the past two days, they have done nothing.
This procedure will allow them to sort out this temporary nutritional solution, look at the pylorus and stomach with a camera, and possibly give her a Botox shot to help relieve the muscles so she can have better digestion.
On a mental and emotional health front, being back in the hospital has been frustrating enough, but dealing with another round of interdisciplinary medical differences of opinions has added to our already boiling-over emotions. We know that Tasha’s nausea and vomiting are caused by extreme gastroparesis and understand the successful ways to treat them, but no one can agree on which steps to take first and when to execute.
Although this is all temporary hope, the upside is that if all looks good, Tasha can be released to home care back in Dayton while they see if her stomach paralysis recovers or if she needs a higher level of intervention.
More to follow
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