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Transplant is a GO!
After waiting a year on the transplant list, Latasha finally gets her second chance at life. An opportunity to pursue all of her dreams, travel overseas, finish her PhD, achieve postponed career goals, and spend many more years with me, racking up memories and adventures. She’s struggled with this condition her entire life, and to…
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Here we go again.
As Tasha stated in her previous post, we got the call yesterday and felt many emotions. Ironically it is one year exactly since she was listed. There is nothing like excitement, fear, anger, sadness, joy, frustration, and everything else. An early morning drive with hours of reflection doesn’t do anything but intensify all of those,…
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The Dust is Settling (a bit)
The Dust is Settling (a bit) Today, Latasha and I had a marathon of doctor appointments at Cleveland Clinic, where we met with one of the surgeons on her transplant team. The discussion concluded with feeling better about their decision to abort the transplant and that they all deeply care about their duty and commitment…
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Reflection: The Week Before Thanksgiving
It is the week before Thanksgiving, and I have so many thoughts and emotions. It was this week in 2016 that my life completely changed. It was Thursday, Nov. 17, 2016. I had two days left of work before I had a week off for Thanksgiving break. I was tired, and my body was swollen.…
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Dental Work
Most people don’t have to worry about infections when they have dental work done. I, on the other hand, have had to be pre-medicated with antibiotics before any dental procedure, including regular dental cleanings. Because of my congenital heart disease, I am at a higher risk of having bacteria enter my bloodstream and causing an…
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Sick Days
“Several of you are using your sick days faster than you’re earning them. Mrs. So and So didn’t take any sick days during her cancer treatment, and that’s the kind of teacher we expect here. So, if you’re one of the teachers who have used all your sick days already or use them as soon…
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PAH and Utah
In 2006, my sister Kim and her family moved to Utah after she gave birth to my niece Trinity. I was in my mid-20s and had been diagnosed with Pulmonary Arterial Hypertension that year, so I was still adjusting to the diagnosis and wrapping my head around all the changes happening in my life. My…
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Arterial Blood Draws
An arterial blood draw is done to measure the levels of oxygen and carbon dioxide in your blood. I’m sure I’ve had arterial blood draws in the past, but I must’ve been unconscious during them or maybe they did it through a catheter, because I don’t remember any of them. So, when I had to…
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Sleep Hallucinations
Some people sleep walk. Some people sleep talk. I talk and see things that are not there. Mostly spiders. Lots and lots of black spiders of all sizes. Sleeping peacefully one second, the next I open my eyes and see a huge black spider hanging from the bedroom ceiling, floating quickly down its invisible thread,…
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Comments I’ve Gotten Through the Years
You’re too young to be sick. You don’t look sick to me. You barely walked and you’re out of breath. Maybe you need to exercise or lose some weight. You’re too young to be handicapped. I don’t see anything wrong with you. You don’t need to park in a handicap spot. Stop being lazy. Use…