Uncategorized
-
Two steps forward, Five back.
This past week, after Tasha’s EGD, feeding tube replacement, and pylorus dilation procedure at Cleveland Clinic on 1 November, everything seemed to be going well—that was until last night. When reintroduced to the feeding tube, Tasha had some digestive issues, but through slow titration of the doses, she got back to complete caloric goals. She…
-
To Grieve or not to Grieve, that is the question!
The following is my raw truth about my current struggle as a caregiver and my reflection on specific aspects of the transplant journey. Denial, anger, bargaining, depression, and acceptance are the classic signs of grief. Tasha and I have been in a rough spot for several weeks. We have both been battling our own battles,…
-
4 Month – HLT Update
Tasha and I returned to Cleveland Clinic on October 30 for her routine labs, X-rays, spirometry, clinical, doctor checkups, and a stomach procedure. Since the feeding tube became dislodged, nutritional goals have been challenging, and Tasha has lost another eight pounds in the two weeks since. Her laboratory results showed dangerously low sodium, magnesium, and…
-
D116 – HLT Update – The Saga of the Stomach
Today marks the 36th day since we returned home from Cleveland, but more importantly, it is the 116th day since Tasha’s heart and double lung transplant. The past few months have been a rollercoaster filled with both joyous moments and, honestly, many more challenging days. It has truly been a wild ride. I’ve struggled to…
-
Setbacks and Opportunities
So last night, LaTasha had really bad vomiting out of nowhere. The worst part is that it came after a few great days of no nausea and tolerating soups, shakes, popsicles, and Gatorade. Unfortunately, the vomiting caused her feeding core pack and tube to become dislodged from her small intestine. We were warned this could…
-
Fear and Regret
I want to write an honest and raw post about how and why fear is the purveyor of my current regret. Fear is a damned evil fucking monster that lives deep within us all. Fear is that dark inner voice that rips us down and stops us from being brave, kind, moral, loving, strong, vulnerable,…
-
100(ish) Day HLT Update
So it has now been 100 days and some change since Latasha had her heart and double lung transplant. And I have to say, what a wild ride it has been. It’s been a rollercoaster filled with adventure, and it has been a high demand on Tahsa and me physically, mentally, emotionally, and, if I’m…
-
It Isn’t All Roses and Sunshine
Warning up front, this one is a bit more raw than most. As I have always done, I am going to keep it real and honest. The title does say it all because it isn’t all roses and sunshine here at the Warner house. Now, don’t get me wrong; as we wind through the 90-day…
-
Adjusting to a new normal
It’s been a week since I woke up, packed up our home-away-from-home, played luggage jenga to fit everything into the car, and broke Tasha out of the hospital. And to be clear, the car won that round. The drive home was surreal and full of excitement and fear. Getting home felt comfortable yet foreign. Having…
-
Home-Sweet-Home
It has been an insane 72 hours, friends. Tasha’s doctors ran a barrage of tests, and she tolerated the tube feeding well enough. With that, Tasha was released for outpatient care, and we are home. Yes, we are home in Dayton, and we got Jack, Gunner, and Binx out of boarding—a special shoutout to Becky…